Tiny Light Madison loves playing with big brother Aaryn, who’s always good for a giggle. She loves playing with blocks and rings when she’s not looking at books or having fun rolling around.
Madison was born with Down syndrome and was diagnosed with type 1 diabetes at the age of 10 months. Madison’s parents’ first reaction to her diagnosis was, “So what does this mean?” They spent as much time as possible meeting with social workers, doctors and nurses and also conducted their own research in order to learn as much as possible about Madison’s diagnoses. Before they could take her home from the hospital, Madison’s parents had to learn how to give Madison two insulin shots a day and blood glucose checks five to six times a day.
Madison’s parents identified a number of great support systems for children with Down syndrome. They encourage other families in similar circumstances to get involved with associations, connect to other families and build a network of friends who will understand the struggles they may be going through.
Madison is currently undergoing occupational therapy and physiotherapy to work on her fine motor skills. Her perseverance and determination inspire her family. Her parents say, “Madison is a trooper; she just keeps going.” For them, her joyful spirit and endurance are the most amazing aspects of the journey. Although Madison’s future is uncertain, her family and friends will support her in whatever she chooses to do and they believe she has a wide open future ahead of her.
Story by Stephanie Bond
Images Captured by Petra King Photography