Meet Adam

Images captured by End Of The Road Photography

Meet Adam. In only two short years this Tiny Light has already taught his parents so many things. They’ve learned to trust in God, to ask for and accept help, and that no matter how hard things get, the world keeps on turning.

When Adam was born seven weeks early, they knew right away something wasn’t right. Five days later they were given the diagnosis and they struggled to deal with the news and the many emotions attached to it. Their baby had Down Syndrome and they were in a fog of confusion for the next few weeks as Adam started his life in the NICU. 


Looking back his mom wishes things could have been different. That acceptance could have come faster. "I feel a bit sad that Adam’s first two years are over. Sad that I didn't enjoy his babyhood as much as I should have. Sad that I wasted way too many tears, and hours and weeks of worry... when I could have replaced those tears and worry with love. Simple PURE and beautiful LOVE. “

Adam gives the best smiles. He loves to wave and wave and wave. He also loves to clean up. Anything and everything goes in the garbage:  his Daddy’s wallet, Mommy’s keys or his big sister’s camera! 


“We know that our little man came to complete our family. We love him with all that we have. We look forward to teaching him... and even more importantly learning from him."

Today they are looking forward to all the excitement and challenges that their future holds. Their greatest hope for ALL their children is their happiness. Their greatest goal is to do right by them.

 Story by Sue Renaud

Nicolas' Story

Images Captured By Studio 9 Photographics

This is Nicholas.  He loves playing with the computer, reading books, and he loves cars.  He is an inspiration to his family and those who know him.He has taught them that “hope is everywhere every day.”

Nicholas has been diagnosed with Developmental Delay, Seizures and Hypotonic (meaning that he has very low muscle tone, and is not strong enough to participate in regular activities).  It was discovered that he has low muscle tone after he was born, but at that time, the enormous affects were not known.  The full diagnosis came at six months old.  His parents were in disbelief that there was something wrong with their sweet baby.

Nicolas spent so much time in the hospitals that close relationships

with many doctors and nurses were made.  At seven years old, the family was able to be home for Christmas for the first time.  Now, with the help of specialized professionals, their lives are functioning normally.  Nicholas is a happy boy who is always smiling.  His seizures are under control with two medications that he is taking for this condition.

Nicholas’ parents have a wish for him; to continue to develop and

progress.  They worry about his future, and they worry about who will take care of him when they are gone.  For now they are taking things one day at a time, doing all they can to help Nicholas’ conditions.  Their excitement continues with every goal or improvement he attains, regardless of how big or small it is!  Progress is progress.

Story by Angela Stephen-Dewhurst

Charlie's Story

Images Captured by O La La Photography

Tiny Light Charlie always has a smile on his face. He loves to play with his big brother and read stories with Mom and Dad. Charlie loves his toy kitchen and also toys that make music. 

Charlie has a very rare and complex condition known as Tetrology of Fallot. This condition is caused by four heart defects that do not allow his blood to carry a normal amount of oxygen. This causes the body to become cyanotic or “blue” because of the poorly oxygenated blood that flows through his veins. Charlie’s parents found out about this condition in the 19th week of the pregnancy. His parents were shocked by the diagnosis but decided to do everything they could for Charlie even before he was born. Unfortunately, Charlie was not able to be carried to full term and was born five weeks early.  It was at that point the severity of his condition became known. 

When Charlie was just over a month old, he had to have open heart surgery to repair his heart. He weighed less than six pounds at that time, and his heart was the size of a California strawberry. After the surgery, Charlie’s heart rate skyrocketed, and he had to recover with his chest open while on a cooling bed for several days. However, the support from the health care team, as well as family and friends, helped Charlie's family through those difficult days. 

Charlie’s heart condition will continue to be monitored, and he may need further surgeries as he gets older. His parents hope that he will be stronger every day, that he will be able to achieve every goal he sets for himself, and that he will see every dream he dreams come true. 

Story by Shauna Salmon