Kaylee's Story

Images Captured by D4 Photography

Kaylee was born December 4, 2010 and was instantly loved by so many. She arrived weighing 7 lbs 9 ozs, with beautiful blue eyes and appearing happy and healthy.

At five months, Kaylee started having seizures and no longer drank her milk. Following a series of medical tests, her parents received devastating news. Kaylee had Leigh's disease, a rare neurometabolic disorder that affects the central nervous system, causing loss of motor skills and eventually death. Kaylee's doctors didn't think she would survive much longer than a year. Happily, she proved them wrong. Despite many days in hospital, this tiny light had much to live for, such as visits with her Great
Nana and Great Grampie and Grandma and Grandpa Detka. Thankfully, her loved ones surrounded her with much love and happiness. With her mom she'd bake cakes, sing and dance in her wheelchair or read and watch videos. And at the end of the day, it was daddy time!

Kaylee loved her first trip to the swimming pool. Sadly, it was also her last. Kaylee passed away at just two and a half years old. But she left her loved ones with many beautiful memories. Just days before she died, she laughed really hard and for the first time said "Mommy," treasured gifts for her family, who will miss her always.

Story Written by Catherine Urquhart

Jayme's Story

Images Captured By Jodie Hadden Photography

22 month old Jayme is a happy little girl who loves swimming, hugging,
people watching and laughing. And this Tiny Light is known for her
infectious giggle!

Jayme arrived in August 2011 after a healthy, full-term pregnancy but
soon after was diagnosed with Down syndrome. It was a shock to her
parents, who were also faced with the news that Jayme had a heart
defect. At just two months old she underwent open heart surgery.

Understandably, for parents Christie and Scott there have been some
tough days. They've worried about Jayme's quality of life and her
future. But the past few years have also shown them they are supported
by an amazing family and friends.

Despite any challenges, Jayme has given her family unconditional love.
And in turn they have come to realize that she can live a long,
healthy and happy life. One that will be even happier this summer,
when Jayme will become a big sister.

Written by Catherine Urquhart

Kathryn's Story

Images Captured by Jennifer Gilbert Photography


Ten year old Kathryn is a bright little girl who loves school and her seven year old brother Geoff. Her favorite things to do include playing with friends, piano lessons and swimming.

It's been nearly five years since Kathryn's family received the devastating news that she had stage four neuroblastoma. A year of intense treatment followed, including surgeries, chemotherapy, two stem cell transplants and 12 rounds of radiation. For 17 months she was in remission, until the cancer returned in September 2010.

Now, after 24 rounds of chemo there's no evidence of the disease. Despite that Kathryn underwent 10 rounds of radiation on two lesion sites. Also, she completed the immunotherapy protocol to help ensure the cancer doesn't return.

Kathryn's parents admit they sometimes fear they will lose her. But for the most part they focus on the positive, and pray that Kathryn will get all the happiness that life has to offer, like getting married and having kids. And for now they celebrate each day as a gift and live life to the fullest.

Story written by Catherine Urquhart