Sadie's Story

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Images Captured By Joanne Bos Photography

Tiny Light Sadie is the sweetest girl you will ever meet. She always has a smile on her face and loves being around people. The nearly three-year old is happy to share laughter, cuddles, kisses and unconditional love.

As an infant, Sadie wasn't progressing as she should and when she was just over a year old she was diagnosed with Angelman syndrome, which is a neuro-genetic disorder caused by missing part of the 15th chromosome. It is characterized by intellectual and developmental disability and sometimes seizures, but also by frequent laughing, smiling and a happy demeanor. Doctors originally said Sadie would not speak and may not walk, but she is already accomplishing things they said she wouldn't. She is crawling and pulling herself up in her crib. Walking seems like it's just around the corner.

Tiny Light Sadie has a challenging road ahead of her, but she is determined in her therapy and has already reached many milestones most kids with Angelman syndrome do not. Plus, she has great support from her older twin brothers and her parents. Sadie's mother says, "I hope for my daughter that she has friends and people that care about her. I hope that Sadie loves her life. I believe she does already!"

Written by Karis Sengara