Levi's Story

At only an hour old, nurses noticed that Tiny Light Levi wasn’t breathing properly.
Doctors diagnosed him with Hypoplastic Left Heart Syndrome. Levi’s heart failed to
grow a left ventricle, and, therefore, his heart wasn’t pumping enough blood through

Images Captured By D4 Photography

This Tiny Light had his first surgery at only three weeks old. The surgeries kept
coming. At four months old, Levi’s liver failed and he underwent another surgery.
At 18 months old, he had open-heart surgery, and at 3 years old, yet another to save
his life. Due to complications from his previous surgeries, scar tissue had become
tangled up in his small intestine, which, had in turn, caused it to die.

Levi’s mother, Christine, says, ‘You just want to suffer instead of him.’ Watching her
little boy suffer is heartbreaking, but the community support they have received
has been overwhelming. Tiny Light Levi is a brave eight-year-old boy. He loves
math and soccer, and loves camping with his family. He has the best smile, and has
learned to be very empathetic towards others. He once gave a nurse a kiss because
she felt bad she had to give him needles!

Christine is reminded everyday how precious life is through her son, Levi. Levi will
always be weak, and he will likely have other surgeries ahead of him. His heart
works very hard every day to compensate for the loss of the left ventricle. Tiny
Light Levi’s dream is to be a baker and have his own bakery some day. His parents
know he will be happy with whatever he does.

Written by Valerie Bush