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Nikolas has ADHD and a neurological disorder known as sensory integration dysfunction (SID) or sensory processing disorder (SPD). This means he has difficulty taking in, processing and responding to sensory information about the environment and from within his own body. The result can be unusual ways of responding or behaving. For example, in the classroom, students with SID might act impulsive, resist group activities, fidget in the seat, or appear inflexible and stubborn.
Unfortunately, SID is not a recognized diagnosis. This has been challenging for Nickolas and his parents, Duane and Jacquie. “School has been very difficult. Most educators have never heard of SPD/SID, or if they have they have no understanding of all the elements involved and how truly difficult day to day life is for our son.”
The family takes it one day at a time. Nickolas is now on medication, and that is helping him focus better in school. This Tiny Light’s incredible resilience amazes his parents every day. “We tell him each and every day, at every opportunity, how much he is loved and that he can do anything he wants to in life.”
Written by Elaine Yong