Orin's Story

Images Captured by Deanna Nilson Photography

You would never guess this cheerful and chubby Tiny Light has already undergone two open heart surgeries with another one still to come.  11-month old Orin loves to talk, bounce in his jolly jumper and watch his big brothers play.

Orin’s parents Julie and Steven found out halfway through the pregnancy their baby boy had a serious heart defect – hypoplastic left heart syndrome, or HLHS.  This means the left side of his heart didn’t develop properly and Orin is missing his left ventricle entirely.  He had his first surgery less than two days after he was born.

It was heart breaking for his family to watch Orin go through the ordeal without even being able to cuddle him.  But they found strength through their faith.  “The most amazing thing is the joy and peace in our family through everything.  Orin doesn’t look like a heart baby.”

Aside from one more open heart surgery in the future, this Tiny Light is expected to live a long and healthy life.  “We have the same fears all parents have when dealing with a threat to their child’s life.  But we have peace from God, a strong loving family, and a strong little boy.”

Written by Elaine Yong