Jaymee & Autumn's Story
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Images Captured by Craig D. Phootography
www.craigdphotography.com
Tiny
Lights Jaymee and Autumn are twins who share one important personality
trait —they are fearless. While Jaymee is easygoing and happy with
herself, Autumn is independent and strong.
When
the girls were born, parents Heather and Ed were told something was
wrong with the size of their heads. Further testing confirmed a
diagnosis of lissencephaly with secondary microcephaly. Lissencephaly
literally means “smooth brain”—a rare brain formation disorder which
results in a lack of development of brain folds and grooves.
Microcephaly is an abnormally small head. The long-term prognosis was
not encouraging, but Jaymee and Autumn have grown and developed at their
own pace.
These
Tiny Lights love bowling, swimming and riding their bikes. Spending
time playing with their brother and sister also top the list for Jaymee
and Autumn. The road has been difficult but the family feels blessed.
“We try to go day by day, even year by year. I hope they learn as much
as they are able to and just are happy and healthy.”
Story Written By Elaine Yong