Emma's Story

Images Captured by Simply Rose Photography

Meet Tiny Light Emma. This sweet little girl loves cuddling and spending time with her family. She has already been fishing and camping on the Skeena River!

At a 28 week routine ultrasound, Emma was diagnosed with Down Syndrome and an Atrioventricular Septal Defect (AVSD). This means she was born with holes between the top two chambers of her heart and the bottom two chambers of her heart. Emma had heart surgery on December 5, 2011 and it was a success! She will be followed by a cardiologist for the rest of her life and may or may not require additional surgery to further repair or replace a valve in her heart. So far, Emma is meeting all of her milestones and bringing so much joy to her family.  

Emma’s parents are overwhelmed by the incredible support shown by their family, friends, and others in their community. In her mother’s words: “family do more than they should because they love us...friends really do care...and strangers can be a great source of support and encouragement.” They hope that Emma will continue to touch and inspire those around her. “She has already shown us that we need to slow down and live in the moment.  So much of our life is out of our control and every moment has the potential to be so precious.”

Story by Emily Harrison