Meet Jamie

Images Captured by Thibodeau Designs Photography

Meet Tiny Light Jamie!  This sweet two-year-old has an amazing ability to make people smile.  She loves playing with her cousins and spending time with her grandparents.  Jamie has her Daddy tied tightly around her finger!

When Jamie’s Mom was 20 weeks pregnant, it was discovered that Jamie has Hypoplastic Left Heart Syndrome.  This means that the aorta and left ventricle are very small, and that the aortic and mitral valves are either too small to allow sufficient blood flow or are closed all together.  As blood returns from the lungs to the left atrium, it must pass through and atrial septal defect to the right side of the heart.

Jamie’s parents were devastated at the diagnosis of their baby.  Still, they knew that this was their child, and they loved her regardless of any issues that she had. Jamie’s parents have had the hardest time seeing their sweet girl after surgeries, hooked up to machines. But they remind themselves that it’s all to help Jamie.

Jamie’s parents encourage other families with ‘Heart Babies’ to live life day to day with their child, keeping their heads up.  “They may be ‘special’ but they are your ‘special’ child.”

Story by Angela Stephen-Dewhurst